Conversations with Cystic Fibrosis Mums

Mums talk about daily life and parenting when you have a child or young adult with cystic fibrosis, as well as the option of organ transplantation in later years. The video also shows Isabel Stenzel Byrnes and Anabel Stenzel, authors of The Power of Two on their visit to Japan.



Cystic Fibrosis Resources

Gene Therapy for Cystic Fibrosis

Professor Brandon Wainwright explains gene therapy for cystic fibrosis. It is a bit out of date in regards to current research but it does include useful information about the potential benefits and limitations of genetic therapy.



Cystic Fibrosis Resources

Cystic Fibrosis Documentary

A short but comprehensive documentary about cystic fibrosis covering topics such as symptoms, genetics, treatments and the perspective of adults with CF. More information about cystic fibrosis can be found on the Mayo Clinic and Kids Health websites (there is also information especially written for teens and kids).



Cystic Fibrosis Resources

What is Bronchiectasis?

Bronchiectasis (pronounced bron-kee-ek'-tas-is) is a condition often associated with cystic fibrosis. Bronchiectasis is caused by recurrent (i.e. repeated) inflammation or infection of the airways in the lungs. This video explains what bronchiectasis is and shows the related changes in the affected area of the lung(s).



Cystic Fibrosis Resources