Showing posts with label CF genetics. Show all posts
Showing posts with label CF genetics. Show all posts

Sunday, August 14, 2011

Cystic Fibrosis Documentary

A short but comprehensive documentary about cystic fibrosis covering topics such as symptoms, genetics, treatments and the perspective of adults with CF. More information about cystic fibrosis can be found on the Mayo Clinic and Kids Health websites (there is also information especially written for teens and kids).



Cystic Fibrosis Resources

Sunday, July 17, 2011

CF for New Parents, Friends or Family

Parents, children and cystic fibrosis professionals from the Children's Hospital at Westmead's Cystic Fibrosis Clinic talk about life with CF. The information is simple but comprehensive making it a great video for families with a child newly diagnosed with CF or friends and family who may not know much about cystic fibrosis. The video explains the basics about CF genetics, what cystic fibrosis is and some of the treatments needed.

If you know of any useful online resources for parents who have just had a child diagnosed with cystic fibrosis (or family and friends) feel free to let us know in the comments :)




Cystic Fibrosis Resources