Cystic Fibrosis for Parents

Debra Boyer M.D, a children's respiratory specialist from the Children's Hospital Boston, provides some great information about cystic fibrosis. This video is especially useful for parents who have just found out their child has or may have CF as this video lacks the usual medical gobbledegock seen with many explanations of cystic fibrosis.



Cystic Fibrosis Resources

Sweat Test for Cystic Fibrosis

The sweat test is one of the most common methods of testing for cystic fibrosis. In this video Gerald Fernald, M.D explains cystic fibrosis and the sweat test. It also shows sweat tests being done.

For further information on sweat tests try KidsHealth, WebMD, Lab Tests Online and the Great Ormond Street Hospital




Cystic Fibrosis Resources

Dying Young - Cystic Fibrosis Documentary

I think this is one of the best cystic fibrosis documentaries available (and one of the highest ranking on YouTube with 122,014 views when this blog post was written).

'Dying Young' focuses on a number of young adults with cystic fibrosis and their families, who are in different stages of their CF journey. It provides basic information about what cystic fibrosis is and the common treatments and hospitalizations - but it goes beyond that. It provides a glimpse of the human side of CF. Rather than watering down the struggles of individuals with CF and their families it shows the raw emotions that are part of life with cystic fibrosis. It shows how heart breaking cystic fibrosis can be.

Produced and created by Current TV it has been used by the Cystic Fibrosis Foundation to increase awareness of the disease (after its original airing on television). It is a video that may help those whose lives are not impacted by CF to gain a better understanding of cystic fibrosis in a way that statistics just can't show.

Note: Siobhan Ryan who was awaiting a lung transplant died on June 24th 2008. The day before this video was loaded to YouTube by the Cystic Fibrosis Foundation.

Cystic Fibrosis Resources