Showing posts with label what is CF?. Show all posts
Showing posts with label what is CF?. Show all posts

Sunday, September 4, 2011

What is Cystic Fibrosis? The "Grey Zone"

This is a very short video (with Pediatric Pulmonologist - Alfin G. Vicencio, MD) about the cystic fibrosis "grey zone" and how this complicates CF diagnosis. The "grey zone" relates to patients who do not present with the typical symptoms of cystic fibrosis but still have illness creating mutations on their cystic fibrosis transmembrane conductance regulator (i.e. the cystic fibrosis gene - also called the CFTR gene). This leads to atypical forms of cystic fibrosis and extends the boundaries of what "cystic fibrosis" is and how it affects people.



Cystic Fibrosis Resources

Sunday, August 14, 2011

Cystic Fibrosis Documentary

A short but comprehensive documentary about cystic fibrosis covering topics such as symptoms, genetics, treatments and the perspective of adults with CF. More information about cystic fibrosis can be found on the Mayo Clinic and Kids Health websites (there is also information especially written for teens and kids).



Cystic Fibrosis Resources