Cystic Fibrosis Author Leah Orr

A short documentary about Leah Orr the author of two children's books about cystic fibrosis - "Kyle's First Crush" and "Kyle's First Playdate". Leah's daughter Ashley has cystic fibrosis.

"Upon learning that her daughter was diagnosed with Cystic Fibrosis (while still in the womb) Orr knew she wanted to do something special. With some input from her mother and three daughters, it was decided that she'd write books to benefit the Cystic Fibrosis (CF) Foundation."

                                            From the Amazon Leah Orr Biography Page


You can also read Leah's story in the Cystic Fibrosis Foundation's "In the Spotlight"

Leah Orr's Books

Eva Markvoort: Blogger with CF

Eva Markvoort talks about CF, her double lung transplant, chronic rejection and hope. Eva died in 2010 at the age of 25. Her importance as a blogger lead to the CNN article Death at 25: Blogging the end of a life.

Eva, from British Columbia, Canada, became well known through her blog 65 Red Roses: Thoughts on Living with CF and the documentary about her - 65 Redroses. Her blogging name comes from the now "CF lore" story of a young child who could not pronounce cystic fibrosis - instead calling it 65 roses.





Eva's Final Video

Christina and Ali Christensen

Christina and Ali Christensen wowed audiences of the 2010 America's Got Talent with their brilliant performances. Christina, Ali and two other Christensen siblings have Cystic Fibrosis (CF).

CF usually affects the lungs so Christina and Ali have overcome many obstacles to follow their love of singing. The sisters "message is that each day is a gift where there is joy to be experienced and dreams to be realized while navigating our personal trials". [from the website]

Go to Christina and Ali's Website





Christina and Ali help with the publicity for Great Strides...




Cystic Fibrosis Resources