Claire - A Cystic Fibrosis Story

Claire (6), her brother Kevin (8) and their parents talk about family life with cystic fibrosis. The video focuses on normal day-to-day life with cystic fibrosis, something which is important for awareness as CF is a 24 hours a day, 7 days a week medical condition.

If you know of other great videos showing more about normal day-to-day life with CF please share them in our comments.



Cystic Fibrosis Resources

"Power of Two" Authors - The Stenzel Twins

One of the few full feature videos (45 minutes) focusing on two cystic fibrosis authors - sisters Anabel Stenzel and Isabel Stenzel Byrnes. The sisters are the authors of The Power of Two: A Twin Triumph over Cystic Fibrosis. This is the first memoir to explore the life of twins living with cystic fibrosis and has inspired the movie - The Power of Two. 




Anabel Stenzel and Isabel Stenzel Byrnes' Book

Made by Cystic Fibrosis Mum

Two simply beautiful videos made by a mum of her children - Joel (CF) and Jeslyn (no-CF). Children with CF and their siblings are such special human beings. Jeslyn has always wanted to help look after her brother Joel in regards to his CF treatments. She must be one of the youngest nurses in Australia!

Parent-made videos seem to capture the heart of CF that are often missing in other videos. They go beyond words and statistics.....







Cystic Fibrosis Resources