Conversations with Cystic Fibrosis Mums

Mums talk about daily life and parenting when you have a child or young adult with cystic fibrosis, as well as the option of organ transplantation in later years. The video also shows Isabel Stenzel Byrnes and Anabel Stenzel, authors of The Power of Two on their visit to Japan.



Cystic Fibrosis Resources

Eva Markvoort: Blogger with CF

Eva Markvoort talks about CF, her double lung transplant, chronic rejection and hope. Eva died in 2010 at the age of 25. Her importance as a blogger lead to the CNN article Death at 25: Blogging the end of a life.

Eva, from British Columbia, Canada, became well known through her blog 65 Red Roses: Thoughts on Living with CF and the documentary about her - 65 Redroses. Her blogging name comes from the now "CF lore" story of a young child who could not pronounce cystic fibrosis - instead calling it 65 roses.





Eva's Final Video