CF for New Parents, Friends or Family

Parents, children and cystic fibrosis professionals from the Children's Hospital at Westmead's Cystic Fibrosis Clinic talk about life with CF. The information is simple but comprehensive making it a great video for families with a child newly diagnosed with CF or friends and family who may not know much about cystic fibrosis. The video explains the basics about CF genetics, what cystic fibrosis is and some of the treatments needed.

If you know of any useful online resources for parents who have just had a child diagnosed with cystic fibrosis (or family and friends) feel free to let us know in the comments :)




Cystic Fibrosis Resources

Claire - A Cystic Fibrosis Story

Claire (6), her brother Kevin (8) and their parents talk about family life with cystic fibrosis. The video focuses on normal day-to-day life with cystic fibrosis, something which is important for awareness as CF is a 24 hours a day, 7 days a week medical condition.

If you know of other great videos showing more about normal day-to-day life with CF please share them in our comments.



Cystic Fibrosis Resources

Tube Feeding and Cystic Fibrosis

Gaining weight is often a significant problem for people with cystic fibrosis. Tube feeding through a Gastrostomy tube (G-tube) or nasogastric (NG) tube are two ways to increase food intake without having to eat or drink more.

These videos from Children's Memorial Hospital provide excellent information about CF nutritional challenges, tube feeding and related topics. It also includes lots of discussion from CF adults, parents, teens and kids about their experiences.

You can also find out more about tubefeeding from the Cystic Fibrosis Foundation








Cystic Fibrosis Resources

Getting Nosey about CF

A cute cartoon for kids created for the Cystic Fibrosis Trust.

Oliver Dillon (12), a young actor with cystic fibrosis, provided the voice of Oli. He hopes the video will not only help children with CF to understand their condition but also enable their friends to have a better understanding of life with cystic fibrosis.

You can see a video interview with Oli on the Kent Online website
 
Overall a great cartoon for children, both with and without cystic fibrosis, and a must watch if you haven't seen it yet.

Visit Oli and Nush's Fundraising Page



Cystic Fibrosis Resources