Conversations with Cystic Fibrosis Mums

Mums talk about daily life and parenting when you have a child or young adult with cystic fibrosis, as well as the option of organ transplantation in later years. The video also shows Isabel Stenzel Byrnes and Anabel Stenzel, authors of The Power of Two on their visit to Japan.



Cystic Fibrosis Resources

CF for New Parents, Friends or Family

Parents, children and cystic fibrosis professionals from the Children's Hospital at Westmead's Cystic Fibrosis Clinic talk about life with CF. The information is simple but comprehensive making it a great video for families with a child newly diagnosed with CF or friends and family who may not know much about cystic fibrosis. The video explains the basics about CF genetics, what cystic fibrosis is and some of the treatments needed.

If you know of any useful online resources for parents who have just had a child diagnosed with cystic fibrosis (or family and friends) feel free to let us know in the comments :)




Cystic Fibrosis Resources

Cystic Fibrosis for Parents

Debra Boyer M.D, a children's respiratory specialist from the Children's Hospital Boston, provides some great information about cystic fibrosis. This video is especially useful for parents who have just found out their child has or may have CF as this video lacks the usual medical gobbledegock seen with many explanations of cystic fibrosis.



Cystic Fibrosis Resources