Breathing Life Awards

Interviews with 9 individuals aged between 9 and 38 years for the CF Trust's 2009 Breathing Life Awards. The Breathing Life Awards recognise and celebrate the achievements and spirit of those living with Cystic Fibrosis in the areas of sport, academics and artistic endeavour.

The 2009 Winners List:

• Junior Sport: Cameron Saltmer (16) Dover, Kent 
• Artistic Award: Chris Benbow (21) Crewe 
• Adult Fighting Spirit: Sarah Elsbury (26) Norwich, Norfolk 
• Fundraising Award: Jodie Symington (24) Hebburn, Tyne and Wear 
• Academic Life: Nigel Brooke (33) Besseccar, Doncaster 
• Adult Sport: Chris Goulden (19) Poole, Dorset 
• Junior Fighting Spirit Award:Sam Roonan (10) Havant, Hampshire

Junior Sport Award




Academic Life Award




Artistic Award



Cystic Fibrosis Resources

Morganko - Highlights from Joshland

Here's the coolest puppet on the planet who "make kids smile and teach[es] them the basics about Cystic Fibrosis every once in a while" (from the Joshland blog).

Morganko is the star, sorry Josh, of a mini-series especially for kids with CF. He makes orange fuzz fashionable as he arrives in Joshland, finds a new use for 'the vest', races in the IV Pole 500 and more........

Here's a selection from Morganko's adventures. To see the rest you'll need to visit him in Joshland.


When Moganko Met Joshy




The "Great CF Check-Up" Happy Dance




Orange Juice Shake Up




Morganko Tries a Pulmonary Function Test




The Hospital Edition

I.V Pole 500





Cystic Fibrosis Resources

Jenny's Picc Line

Two excellent videos showing life at home with a PICC line. The second shows the PICC line being removed. There is some German (???) text but otherwise its all English.

A picc line is a peripherally inserted central catheter. To find out more about PICC lines have a look at this PICC fact sheet from the Cystic Fibrosis Foundation.







Cystic Fibrosis Resources

Cystic Fibrosis for Parents

Debra Boyer M.D, a children's respiratory specialist from the Children's Hospital Boston, provides some great information about cystic fibrosis. This video is especially useful for parents who have just found out their child has or may have CF as this video lacks the usual medical gobbledegock seen with many explanations of cystic fibrosis.



Cystic Fibrosis Resources

Tube Feeding and Cystic Fibrosis

Gaining weight is often a significant problem for people with cystic fibrosis. Tube feeding through a Gastrostomy tube (G-tube) or nasogastric (NG) tube are two ways to increase food intake without having to eat or drink more.

These videos from Children's Memorial Hospital provide excellent information about CF nutritional challenges, tube feeding and related topics. It also includes lots of discussion from CF adults, parents, teens and kids about their experiences.

You can also find out more about tubefeeding from the Cystic Fibrosis Foundation








Cystic Fibrosis Resources

Sweat Test for Cystic Fibrosis

The sweat test is one of the most common methods of testing for cystic fibrosis. In this video Gerald Fernald, M.D explains cystic fibrosis and the sweat test. It also shows sweat tests being done.

For further information on sweat tests try KidsHealth, WebMD, Lab Tests Online and the Great Ormond Street Hospital




Cystic Fibrosis Resources

Alice Martineau: A Musician with CF

A mini-documentary on singer-songwriter Alice Martineau (1972 - 2003), a British musician who graduated from Kings College with first class honours in English. Initially working as a model she changed direction in her mid-20s pursuing a career as a singer-songwriter instead. Her song writing was created through her love of writing, music (she played both piano and flute) as well as her personal experiences - which included living with CF.

I like to watch you from above

it's not an ordinary love

I like to feel you

so close to me

I bet I'm nearer than you'll ever see

                                                 Lyrics for Inside of You

Visit the Alice Martineau Remembrance site

Alice's CD "Daydreams"